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Which would have helped him, but the is no cure. Nicola Joanne Shaw i understand his muscles couldn’t be fixed. What i don’t understand is, he was severely malnourished, why wasn’t something done after his surgery to help improve his nourishment and possible lack of vitamin deficiencies. They let him heal and return home where his parents still struggled to provide and there was more than enough money left to cover a longer hospital stay to address his Santa all I want for Christmas is you just kidding I want wine shirt wouldn’t you say. I’m just trying to understand this. To survive a pioneering surgery, only to die of other health issues that could have been address over those eight months. Santa all I want for Christmas is you just kidding I want wine shirt, ladies shirt, hoodie, sweater Sweat shirt Yaasiel NyNy Prescod. He suffered from pulmonary issues during the video it was what they feared the most if a bad lung infection could turn fatal in Santa all I want for Christmas is you just kidding I want wine shirt his mother said he was doing well and died suddenly. My only comfort is to know that after the surgery he did enjoy many things in life that otherwise he probably wouldn’t have, it’s heartbreaking. Yaasiel NyNy Prescod He’s not malnourished, this is what a child with a muscle wasting condition looks like. I should know I have two sons with a muscle wasting condition, my 10yr old is extremely thin, he has a small amount muscle, but you can see his bones and believe me he eats loads. Santa all I want for Christmas is you just kidding I want wine shirt, unisex shirt, longsleeve Unisex shirt This is the nature of these conditions, which can also affect lungs and heart muscle. A lot of children die young with conditions like this, even in Santa all I want for Christmas is you just kidding I want wine shirt and US. Heartbreaking scenery but salute for those who helped this brave guy to fulfill his beautiful dream. Although it’s a short time still he was able to enjoy his life, to play, smile and experience the things he wanted. How generous Julie was and for all the people who donated for him. For those doctors and medical practitioner who did the surgery you made this angel and his family happy. Glendale Garcia, my gosh I wept through the entire video and after knowing he didn’t survive.